Rapid or restricted breathing. I really cannot believe this post Im like REALLY REALLY .some Eejit that have no absolute clue what the hell there talking about Im flabbergasted .Well I have been diagnosed with fibromyalgia M.E and osteoarthritis 6 years ago but think I have had it longer, so Eejits I have worked most of my life never ever been on benefits and Im 50 years old and gave up working a year and a half ago I have been in agony and so exhausted I could no longer do it anymore Ive always been a big girl thyroid problems but I do love my food .my last job I was a Support worker cycling round town seeing to elderly the infirm in there homes in.all weathers can be predictable in Scotland.but it got to a stage I tried to carry on to the point I was in years on my shift so my husband told me to pack it in .I love music festivals ,dancing ,socialising to I cant drink anymore I can socialise depending how I am that day so Im really down as my whole life has changed .So how dare you slag people off with this debilitating condition you ignorant person would not wish it upon anyone .but people like you who have no idea I wish it on you .to all sufferers Im with you absolutely terrible. For people like you that have no idea what its like to have an invisible illness, youre the reason we try to hide our illnesses because only others living with them will understand. A good diagnosis is necessary to move forward to the effective treatment plan that consists of combination of medication, exercise, stress reduction and good sleep patterns. There is just an amazing thrill of looking at your 10 bottles of medicine and trying to remember what to take when. I am 40. there is no reason we cant. Another theory suggests that fibromyalgia results from low blood flow to the brain. I am a 47 yo woman of 6 children. As such, fibromyalgia cannot be defined by its cause but rather by symptoms for which there are no other explanations. Sure she can run 3 times a week to the old folks home to attend to her mother for hours when there is paid care. But, if I do things rest a little bit do more things, I can keep going and eventually do everything I need to do. What I found out is this: if I try to ignore the pain and do things in spite of it it gets worse. meanwhile we are drowning in medical debt and copays. God Bless, Also when that person get tired of not being able to do all the things that a person with fibromyalgia cant do. They just cut my hours and another coworkers hours foo. You might want to read the article before you start calling names. Adrienne Dellwo is an experienced journalist who was diagnosed with fibromyalgia and has written extensively on the topic. You may need to see several doctors to get the right diagnosis. Ty for writing this. Loss of bladder control. Did you ever think, the statistics are telling you how hard it is to function with these diseases. https://www.businesswire.com/news/home/20201026005840/en/EpicGenetics-Announces-Research-Activity-with-Mayo-Clinic-to-Advance-Fibromyalgia-Diagnostics, because you said some really valid stuff there that Id agree with but as a sufferer of fibro myalgia and other conditions.. As you dont suffer from fibro nor I expect lupus, you might need to research people with the above conditions and you will find an array of symptoms that correlate with their saud illness.. For example, my best friend has the butterfly rash and has been diagnosed lupus, shes also exhausted and all the other things.. Sadly most medical studies are done on men and womens bodies are ignored. We also use third-party cookies that help us analyze and understand how you use this website. WebMalingering is the medical term for faking or exaggerating symptoms, usually in order to obtain some sort of benefit. A combination of lifestyle modifications and medication may be necessary for those whose condition does not respond to simple therapies. Sally said, so I know its true. What can I do? Which brings me to my next point; it may well be a syndrome & not a disease, but we accept many other syndromes as legitimate diagnosis, so why the stigma with this one. Probably because 90% of people with fibro are women. Thanks to chronic fatigue , sore muscles, bones ,even my skin hurts. I have 3 kids the youngest being 7 and he being the one that has to suffer because I am in too much pain to do anything.. And the cycle is so vicious I get depressed cuz im in pain and then being depressed causes more pain because I am in the bed not able/wanting to do much from the depression which therefore puts strain on my body causing me more pain.. And sleep?? May you soon join our ranks. So for those of you ignorant bastards with something to say, fuck off. Exercise is considered the primary method for managing and treating fibromyalgia. Its a very confusing condition and is also hard for clinicians to confirm the diagnosis due to mimicking symptoms. Instead, theyll look for ways to bring everyone else down. WebSome people with fibromyalgia feel extreme anxiety about a physical symptom such as pain or fatigue. Thus was after hearing she was a hard drinker and moved out because of a huge fight with her mom. I dont take pain medication, ie. Good luck! Some people start dealing with symptoms as small children. But I need some help getting there. Yes. they have the energy to go on trips w family no problem, meanwhile Im stuck running a house by myself. I can tell you have never felt the pain of Fibro so you just hop to saying its fake. doctors has an ego and they will tell you things with certainty and sometimes will act like if they are GOD and they know it all and have control over everything, but they dont. For me, the main thing that makes being ill the most frustrating; unpredictability. I stopped taking it. Good for you. And new ailments just keep coming and coming? She is bubbly and giggles at every man that walks through our office doors. Many people who say they have fibromyalgia, including some comments on this very page, then proceed to list off four other medical conditions they also have. . This is NOT some thing i just made up in my head.. Youve noticed the battery draining more quickly than normal. WebStiffness and tenderness in the muscles as well as joints Frustrations and also migraine headaches Short-tempered digestive tract disorder (IBS) or other digestion problems Anxiety and anxiety Indications Someone May Be Faking Fibromyalgia I want to see the world and experience as much as I can not dwell on my illness , my old age or anything else. Its even better to be regularly reminded that you are fat and that you need to exercise more and that your pain is just all in your head. Our websites Facebook page is filled with posts about how much it hurts to have fibro, how their lives have been ruined, and how everyone who suffers from it is a hero. Just because people dont further education doesnt mean they are stupid. 50 years ago, doctors could not diagnose any of my symptoms. I also have, yep you guessed it!!!!!! Please see my disclosure policy for details. That person probably kicks his or her dog, too. I ache, but thats life after being a child and young adult athlete. Save my name, email, and website in this browser for the next time I comment. Your email address will not be published. Maybe next time you should just ignore rude people (then it won't look like he got to you). People living with invisible illnesses are one of the strongest people in this world. In some cases, an emotional disturbance can trigger a flare-up, leading some bystanders to assume that the pain is psychological rather than physical. Temporomandibular joint pain (TMJ) Allodynia. You get to lay in Lack of awareness of surroundings. Can anyone help me? I started to have flu- like aches like I had a fever combined with fatigue/exhaustion like you get again with the flu. And, while genetics are believed to play a part, scientists have yet to uncover any genetic anomaly that could explain the spectrum of symptoms experienced with fibromyalgia. Unfinished projects that i start when i feel good. Just a suggestion. The tender point examination is a physical examination in which the healthcare provider applies pressure to specific points on the body to assess for pain and tenderness, which is a characteristic symptoms of fibromyalgia. I hear karma is a bitch. So I tried Lyrica. It's weird how you have Lyme disease & Fibro, when Lyme disease can cause many of the symptoms that Fibro supposedly causes. A lot of times, these hurtful remarks stem from jealousy. However she did have a rose colored patch on her face before the diagnosis. Some of the comments are so damn ridiculous, some of yall need the shit slapped out of you. While all the other kids were doing kids stuff, I was praying for one day of feeling normal. . You might want to actually read the article before you rage comment. And also females are more targeted than males. Rapid or restricted breathing. Powered by Phlox Theme. Which would you choose?? Another strange thing is found out she drank hard liquor and this diagnoses came after her mom and her had a fight and she moved out fir a month. I have never taken illegal drugs and I try to go without prescription drugs as much as possible reducing the amount prescribed to half because I am aware of the effects it can have on my health long term, after all, I actually do want to get better, but nothing I have tried so far has worked. Day. Read our, What to Know About Fibromyalgia and COVID-19, Paresthesia in Fibromyalgia and Chronic Fatigue Syndrome, How Showering Can Worsen Symptoms of Fibromyalgia and ME/CFS, Fibromyalgia, Chronic Fatigue, and Excessive Sweating. It is also known as Fibromyalgia Syndrome (FMS). Ive also never known an active and fit woman who claimed this condition. To conclude if youre one of the estimated 10 million Americans who have fibromyalgia, you need to take note of the site and brutality of your pain, as well as any of several other symptoms that are commonly linked with the condition. WebFibromyalgia is a fake disease. I avoid sugar. And then I was diagnosed. Duration of pain:Fibromyalgia is a chronic condition. Severe mental health disorders like anxiety or psychosis. Gluten-free food is introduced into the diet. The way I see is: it doesnt matter if one calls it fibromyalgia, depression, muscle tension (because I think it might be something like that, at least in my case), a psycomathic disease, a sleep problem, getting old or just globs globs. By doing so, you are able to remove doubt from the conversation and offer support whenever symptoms do flare. I never actually accused anyone, just at times skeptical of their illness. Its a simple blood test. No this is not fake! Among the secret signs of a person faking fibromyalgia is symptom discrepancies. Location of pain:If you have fibromyalgia, your pain isnt confined to one area of your body. One of the challenges of living with fibromyalgia is that even loved ones often have a hard time getting their heads around what the disease is all about. Dont rely on your doctors they are human and make mistakes, the difference, doctors will never admit they wrong because they dont like to be sued. You know why we talk about being in Pain? I am not going to dignify your trolling with much of a response. Lab work is number one in crossing possibilities off the list. Im not sure I helped you. One of the reasons why people often question the existence of fibromyalgia is that it doesnt have a single, identifiable cause, such as an infection, tumor, or congenital defect. it is an abnormality where the brain does not process incoming signals. we have had 0 intimacy in over 3 years. Enjoy your health while you have it. By Adrienne Dellwo My statements will be highly controversial, but they are my truth in my life story; I was never intended to live with a lifetime fibro label. But just like the other comment I dont care what you call it, all I know is, is that I feel it! I have seen loved ones struggling through the pain of a long recovery process following surgery, and they forced themselves to work through the pain. But honestly I hope no one has to find out the hard way cause its defiantly real. I do think it is probably the only way you will understand this is not a "fake disease". Here is the list of a few medical conditions that can be confused with fibromyalgia, Following are the criteria that are mostly used for the diagnosis of fibromyalgia. I was a successful person making very good money. The following could be the areas of pain: the chest pain of fibromyalgia can mimic a heart attack. I hate that too. If i want to be able to do the normal functions as a mother like cook clean bathe him laundry Then biking is NOT the choice to make.. Whats your choice sally?? 2. these disease are like a garbage disposal and the doctor will use them when they dont know what to tell you and dont want you to come back and sue them for malpractice. However, I personally know someone who is faking fibromyalgia to keep from working even a part time job. Fibro was an excuse for appointments and a lot of nonsense because I had superb insurance. What really makes me mad is when ignorant people say You dont look sick Wow! Youre at chronicmom.com A day in the life of a Mom with Fibromyalgia and Lyme Disease.. Its the fibro community. amzn_assoc_linkid = "54a3bf9a7273f1e09efdddf6522301cf"; Feeling like no matter how much sleep you get, youre still completely and entirely worn out. I cant take narcotics for pain, nor am I on disability due to my own personal situation, however, I know that theyre are people like me who are, and they deserve it! What an arsehole l so hope you get it you patronising twat. Fibromyalgia is very real, even you admitted there are many symptoms. My step daughter was diagnosed with Lupus. Fibro is a band-aide, not the best that is out there for you! Fibromyalgia sufferers often report feeling tired and fatigued even if they have not slept for days. .and i appreciate your sarcasm. It doesnt diminish us, it makes us resourceful. At worst I thought that they were suffering from aches & pains that went along with Chronic Fatigue Syndrome. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Living with Fibromyalgia is the best thing ever, I love knowing that Fibromyalgia is fake and I get to fake my symptoms every day so people think Im sick. Along with pain, various other common Shes 49. Keep doing what youre doing. Im a single mom of a little boy and still roll my ass out of bed to a 40+ hour job. Dr. Hascalovici shares, "You may have fibromyalgia if the pain makes it difficult to concentrate. As you probably know, fibromyalgia can be primary or secondary. I have put together all my symptoms Ive had for years and they are symptoms of fibro. They look at you baffled, then you imagine them thinking: like okay, . Perhaps you havent read the book of Job in the Bible? I also work a 40 hour week, you try it. If you think you could have it, pack your tolerance. Fakers. I wish you the best of luck & good health!! Youre an idiot. If you only knew! I pay my own damn bills and dont depend on anyone for ANYTHING. The VAS is a simple tool that measures pain on a scale from 0 to 10. And thats saying a LOT. To improve the symptoms of fibromyalgia a combination of low-impact aerobic exercise and resistance training is advised. I was so offended at the time, but today, I SO appreciate him and his guidance. Digestive pain. "Exploring Genetic Susceptibility to Fibromyalgia." The juvenile fibromyalgia syndrome (JFMS): a poorly defined disorder. More importantly, you remove the stress that can make the condition worse. Her mom seems to put unwanted pressure on people because she refuses to take responsibility for herself..I just wonder if any of this had to do with her getting sick?? But to rule out other medical conditions GP can order some tests such as: Tender points are the body areas where the patient feels severe pain. At any rate, theres no excuse for looking up an illness that you dont believe in just to get your rocks off by making hateful, vile, disgusting, & rude comments about people that you know nothing about, & furthermore about a medical condition that you have no medical education on. The pain got away! I feel like shit but life does not stop. And we talk about being heros or warriors because we are. ", You Will Receive Latest News And Updates On Your Favorites. I myself have a Bachelors of Art Degree. Moyo Studio / Getty Images. As it is, justgiving.com will not accept fundraisers to be euthanised because you are sick of living with fake-fibro every day. Maybe we get it from all the things we have to deal with in men. Swipe Left to Read more on Fibromyalgia or Click Here , Connection between Hypertension, High Blood Pressure and Fibromyalgia, How to Recognize the signs and symptoms of Fibromyalgia, 27 Invisible Symptoms of Fibromyalgia you cannot miss, What is Fibromyalgia and How Do I Know if I Have It? I was horrendously achy, but also, I was a dancer of 15 years who had been through 7 orthopedic surgeries. This category only includes cookies that ensures basic functionalities and security features of the website. I have fibromyalgia and 6 other incurable illnesses Im also currently being tested for Cushings disease and so far the testing is coming back positive. Seizures, stroke, or paralysis. amzn_assoc_tracking_id = "chronicmom-20"; While youre waiting for appeal after appeal to go through you get to sponge off whomever you want! When my son wants me 2 play with him, i have 2 make a decision Go ride bikes and be in pain for the next 2-5 days, OR, disappoint my kid once again just so i dont have to be in pain.. Whats your choice??? You get to lay in bed all day because Fibromyalgia is fake. All before this happen?? Dear best advice, This is very clearly satire. They have fibromyalgia and know it is terrible. so for anyone who thinks its not real I hope and pray tour never diagnosed with fibro of whom Im sure most are men cause it rarely hits men from all Ive read. I was married to a Fybro bullshitter for 10 years. The quality of the pain may feel like a sharp, stabbing, or burning sensation. Lack of Cause and Diagnostic Tools Creates Misconceptions. Required fields are marked *. So by boosting one another when we feel low, we may save a life. Certain dietary changes are made in patients with fibromyalgia, as we say we are what we eat, and these dietary changes play an important role in any treatment plan for patients with fibromyalgia. What works? I love that Fibromyalgia is so fake that I can be *gaslighted by doctors who dont take me seriously. I HAVE changed my diet. There is only one solution to any illness. Not to mention other chronic health issues I deal with. WebPersistent and Chronic Fatigue Chronic fatigue is common in people living with fibromyalgia. Its not an easy decision to make EVER.. Until we have a better idea of what causes fibromyalgia, support from family and friends may end up being one of the best facets of treatment for those suffering this still-mysterious condition. It also doesnt show up in blood because it is thought to originate in the mitochondria of cells and affects all sufferers differently, thus the problem with just one test. If you can get disability benefits you get to live the life of luxury on $900 a month. Its truly an introverts dream. This negative perception can be very harmful to those who are truly suffering from Fibromyalgia. I wonder if was correct diagnosis. My step daughter got diagnosed with lupus. Its a good thing this fake disease is preparing you for when you are an old person, youre going to be a pro at this sick thing. Obviously not ALL the symptoms, maybe some of them, because what you had was not fibromyalgia. Complete nonsense.